I pioneered the @escap_study which proved feasible (due to go multi-centre) and ithe findings are just about to be published! But great news because an electrical stimulation treatment has been approved by NICE to treat the swallow condition I had severely in 2010/11...
Read this published research, my anecdotal findings for last 8 years PROVEN! Now for more locked in syndrome improvement research! Effect of Exercise on Physical Recovery of People with Locked-In Syndrome after Stroke: What Do We Know from the Current Evidence? A...
Communicating there are ‘no promises just possibilities’ gives patients, but even more importantly, vulnerable family members, HOPE. It’s not false hope, nor is it about quashing all hope of any future improvement either. Frankly, during the last 8 years of my...
Since February 2010, my life suddenly changed beyond all belief! Disbelief, would actually be more accurate. I suffered a catastrophic brainstem stroke. Yeah me, the thirty nine year old, obsessive, uber fit 70 mile-a-week fell runner and mum of three dependent...
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