I pioneered the @escap_study which proved feasible (due to go multi-centre) and ithe findings are just about to be published! But great news because an electrical stimulation treatment has been approved by NICE to treat the swallow condition I had severely in 2010/11...
Read this published research, my anecdotal findings for last 8 years PROVEN! Now for more locked in syndrome improvement research! Effect of Exercise on Physical Recovery of People with Locked-In Syndrome after Stroke: What Do We Know from the Current Evidence? A...
Communicating there are ‘no promises just possibilities’ gives patients, but even more importantly, vulnerable family members, HOPE. It’s not false hope, nor is it about quashing all hope of any future improvement either. Frankly, during the last 8 years of my...
Since February 2010, my life suddenly changed beyond all belief! Disbelief, would actually be more accurate. I suffered a catastrophic brainstem stroke. Yeah me, the thirty nine year old, obsessive, uber fit 70 mile-a-week fell runner and mum of three dependent...
Amanda Ferguson (45) suspected drugs in the accident and amergency department. Jesse North (25) was diagnosed initially with vertigo in the emergency room but too was suffering with an early onset brainstem stroke. Steven Cassidy said ‘my mum was 49 and was diagnosed...
Yesterday, I gave a speech to GP practice manager members of CHEC – the leading provider of education, training, referrals management and project leadership for GP Practices and Primary Care. The audience were engaged and keen to hear what my ‘mind-blowing ways...
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